Life of someone with EDS/ Ehlers Danlos Syndrome: I have had it all my life, but don't know the type. I was trying to find a geneticist that accepts Medicaid because I am having more and more joint pain(if it's not my scoliosis, its joints), and the only way to truly find alternatives and answers besides Pain medications would be knowing the type I have. so I called Medicaid, but they say all that's in their system is Pediatrics.
God, please send me a sign and some type of help. 🤷♀️🙏🙏🙏🙏🙏 #RareDisabilities #EDS #EhlersDanlos #Louisiana #Medicaid #MedicalSystem #Disabled #Disability
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