Random thought after watching a Sixth Sense clip

Rethinking about #TheSixthSense and knowing now about #MunchausenSyndromeByProxy, what if that's why that mom was poisoning her kid? Not to kill her but to get attention from having a sickly ill child? Like Dee-Dee Blanchard did with #GypsyRoseBlanchard ??? #OMG #MindBlown

It all makes sense now!

Youtube ideas?

Gonna do a YouTube video(s) with my fiancé (eventually- when I am not hurting or in pain or drugged up on pain meds). Send us any questions or dares or something fun and we’ll answer/do on the video. #truthordare #QandA #fiancetag #bfgftag #jabberjawingwithJamie #youtube
#JabbinJamie #JamieJabs #JamiesJoy #JamiesJoyfulLife #JamiesJourney

Gypsy-Rose Blanchard...hardened Criminal or victim that fell through the cracks?

If you don't know who Gypsy Rose is by now, you must be living under a rock or don't watch any media; between the Dr. Phil interview with Gypsy in 2017, Hulu's recent docu-series "The Act," HBO's documentary "Mommy Dead and Dearest," etc.
Gypsy Rose was the girl who had many "disorders" and "life-threatening conditions," according to her mother, Dee-Dee Blanchard. They received donations,free housing, trips, etc. due to Gypsy's "conditions." Only things aren't what they appear.
Gypsy was a victim of Munchausen Syndrome by Proxy. Her mother, Dee-Dee, forced Gypsy into a wheelchair by the time the girl was 7 years old and subjected Gypsy to many unnecessary invasive operations and procedures. She had Gypsy on a feeding tube and mixed many medications into the tube. Some of the medications side effects simulated the symptoms of some of the disorders that Dee-Dee claimed Gypsy suffered from.
Dee-Dee also never left Gypsy alone with anyone. She told people Gypsy was mild-moderate mentally retarded" and had the mind of a "seven years old," I think was what was said. She coached Gypsy to not say a word at doctor checkups, and despite CPS investigating Gypsy was too scared and coached to reach out.
By her teen years, she began sneaking around when her mom was asleep. She knew she could walk and would sneak around at night, eating sugary treats and drinks despite her mom saying "Gypsy is allergic to sugar," (why then would it be in the house is my question), and Gypsy would sneak makeup tutorials, research kissing, boys, etc. She made a fake Facebook and created a dating profile. She eventually met and secretly texted guys. She just wanted a normal life away from her mother's control. Eventually, she met and convinced Nick Godejohn, her secret online boyfriend, to help kill her mother.

She was desperate. How would you feel? Knowing you were perfectly healthy, knowing you could walk, knowing that if you disobeyed how your controlling mom wanted, she'd react in anger and sometimes be physical?

Gypsy got 10 years on a Second Degree Murder Charge. The system failed her, she would run away, but her mom would track her down and sometimes tied her to the bed. Her mom charmed and lied. From the outside, she seemed like "Number one Mom," because she seemed so attentive to Gypsy's needs, but really she was a monster and abused the girl into lying.
Yes, Gypsy did plan to murder her mom, but to be honest, no telling what those meds did for years to mess up her mentality, plus the "lines of morality" were blurred by her putting on this charade for so long.
Frankly, Gypsy is a victim of the system. She needs therapy and mental help from the psychological and emotional abuse that she went through at the hands of her mother who is supposed to have been her protector not her tormentor. Gypsy was desperate and it was the only way she saw she could escape her mother's clutches.
Please sign the change.org petition, https://www.change.org/p/missouri-governor-free-gypsy-rose-blanchard/psf/share?share=1 Because she doesn't belong in prison. She was a victim.

Thinking of running for president when i turn 35

I originally thought Trump was lesser of two evils, but upon seeing how he's building that immoral wall, and the latest stunt from "Devil Devos" defunding Special Olympics, and Trump ends ACA.  I am convinced that no one will truly give a "crud" about special needs advocacy and their rights until someone who has experienced it, gets into office.


1. I will not hire "rich friends" based on association; I will hire people based on qualifications to get the job done.

2. I will make sure Medicaid is accepted throughout the country. This not taking Medicaid from one state because its from another state BS is gonna end!

3. SSI and Foodstamps for Disabled will be decent enough to live on
4. Assistive programs for those with special needs will be available throughout
5. Private schools will be able to receive funds federally if they have special needs classes
6. Pedophilia will receive life sentences. No more of this "they're reformed, they got good behavior so time off." BS. We will protect our children

7. Special Training to all police officers in regards to Mental Health, Autism, Special Needs, etc.


All I can think of Right now... #Jamie4President2026

Need Revision Surgey #MyGoFundMe

https://www.gofundme.com/jamie-has-broken-rods-and-other-problems-occurring?fbclid=IwAR1eoT8HJHiIHSc6bX9Ej31bO0mhl5TIETaFEvpw8iXrHhme23ZlKcbbdWk

My go-fund me account. Please share around if you cannot donate. Thanks <3

update

I legit have the best mom, hands down. She gave up some of the time she could be doing stuff for Heather's baby shower to calm my anxieties and took me to wound care. Good news, it's not an infection, it's just a little red and that is "common when healing," and I just need to "try to keep it covered as much as possible to keep infections out."
She then asked if I had anything to eat at my apartment, which I did, but I told her "yes, but I am so tired of leftovers."

Her: "Well, what are you hungry for? Sonic? Burger King? McDonald's? Taco Bell?"
Me: "Taco Bell"
Her (continues listing, which was a mistake): Chick Fil A
Me: Oh my goodness, yes! My weakness! Chick Fil A!
Her: oh my! What about your stomach?
me: I am hurting in my back which means I don't give a flying flip about my stomach's issues. when I hurt, I eat junk. its my comfort.

her: Okay.
(so yes, she got me Chick Fil A nugget meal).

Then we went to Target, she needed some things for Heather's baby shower, but didn't find anything of what she wanted.
Her: Need anything before we leave?

Me: Well, I'd like some snacks so I am not stuck eating creamy peanut butter out of the jar till my food stamps come in.

Her: Like what?
Me: Just some popcorn, a thing of chips, some real coke cola and not the no-name brand cheapo one me and David been getting at Fred's, some fruit roll ups, and some type of cookies.

Her: okay. I'll get that for you.

So I legit have the best Mom in the world! and a great Dad who works hard to pay for it :P <3 #Blessed

anyway, I am home now, and going try to rest despite my back aching.

Can't sleep so I am gonna ramble....

After staying up till midnight, then going to bed only to toss for two hours uncomfortably, I came back into the living room while my fiance' slept. Normally, he'd still be up as well, doing his best to help get me comfortable(sometimes its out of either of our control),  but he has to work the rest of the week with a new job he just started so I put on a "brave face" and hid my pain from him.
My wound that I have been dealing for almost 2 years feels a tad swollen and it itches around it. It looks really red in the pictures I take myself, but again I don't want to say anything to him because knowing him, he will ditch the job to take me to ER or wound care center.
I am also hiding it and not saying anything to Mom, because she is busy with planning a baby shower for her niece Heather. doesn't have time to worry about little old me and my wound. I know that I need to get it seen about and it could be dangerous, but at the same time, I hate being a burden. :( it'd be so much simpler if I wasn't disabled and didn't have this stupid wound. I am conflicted and hiding something that could end up being very serious.
I know that once they read this (if they read this,) I will get some sort of lecture, but this is my feelings sometimes; that I am a burden. If it wouldn't be for my friends and family, I'd probably have "offed" myself years ago during middle school or high school. There are times when doubt creeps in.

1.) With my fiance':  will never have a normal life--they may not have kids, they may be stuck taking care of me the rest of their life, I won't be able to cater to them like a wife should, etc etc. Why does he love me? Why is he here? He could be with anyone? Why does he want some virgin girl with barely any boobs and a little butt, and short as all heck with disabilities out the wazoo?

2.) My parents: I feel like sometimes I am a disappointment(more with my dad). I don't know what dreams they had for me (some parents have their kids futures all planned out). I am pretty sure if they had a plan for my future, it wouldn't have included all these disabilities, dr appointments, and "curve balls of life."

3.) I am really immature still. I am almost 28 and still love dress up, cartoons/kids shows and movies, the Children's Museum, riding 4wheelers and go-karts and golf-carts, I love animals and dressing them up in clothes/costumes, I still think about my dolls and my barbies. I can still get "in touch with my inner kid," easily and my dad "rags me" about it a lot. I don't watch the news at all- I see enough of it on social media and it depresses me (My fiance' says I need to "get with reality"- No thanks, if reality is watching the news, then I rather live in my little fantasy bubble. I already know things are messed up and crazy in the world. :( #ITrustInGod to fix things. My mom seems to get me the best. She doesn't mind me being immature. Sure there are times when we see things differently, but she doesn't rag me on stuff I can't help; like my "immaturity." Come to think of it, once I reached age 10, was when Dad started trying to get me to "grow up a little" and Mom always defended me saying "let her be a kid as long as she likes." (I am sure that's not her feelings now, but she knows I "adult up" and take care of what needs to get completed.) #BestMomAward

4.) Life has beaten me up and I lost a lot of the fun-loving and creative person I use to be. I am more introverted, self-conscious, anxious in public, feel like I wanna hide when I get stares, or when people are rude/discriminatory towards me or someone disabled, I am ready to throw down and fight. I don't know. I just don't feel like my old self. I feel like I need to get back to the essence of who I really am. I need that spark and zest for life, back although it is kinda hard when you living on pain meds and sometimes even that doesn't help. Maybe once I get these broken rods taken care of, maybe my pain will diminish and I can get some of that joy for life back. One can only hope.

pain level 100 tonight 😭😭😭😭

I legit want to break down, crying in the fetal position, due to how much pain I am in tonight. My curve is sensitive to the touch and making "creaking" noises. My pain meds don't seem to even dull the pain anymore.
The CT scan needs to hurry and done (found out today that Medicaid approved, so now just to wait to be put on schedule UGH!) So I can get this surgery and get back to a semi-normal life like I had before all this pain!
#ScoliosisProbs #KyphosisProbs #Humpback #HunchbackGirl #TwistedSister #TwistedPretzel #PretzelGirl #CurvyGirl #Curvyinwrongplaces #EhlersDanlosSyndrome #EDS #ZebraGirl #SpinalFusion #BrokenRods #NeedRevisionSurgery

medicaid headache

So I have been waiting for orders for a CT scan to be approved for a little over a week, almost 2 weeks through Medicaid. I decided to call to find out what the hold up is.
Took 3 calls back and forth from Medicaid to my GP's office, but I think I finally got it all straightened out.

1st Medicaid person: we need them to do prior authorization. (Total confusion, I hang up and then clear my head and call again to better explain my situation.)

2nd Medicaid person: shows only 1 CT scan and it shows it been approved. They need to call us with the prior authorization # that was sent back to them.

(Okay, simple enough. I call my Gp's office): There was another one that needs to be done and the website shows that one is still pending.

Okay..so I call Medicaid a 3rd time: The 2nd order isn't showing up on their side so I sit on hold while they call the GP's office and try to get this all straightened out.

I Need these CT orders done so I can get my CT sent to Dr. Kelly and figure out a surgery plan to fix my broken rods and get the f off these pain meds.

Waiting and living on pain meds isn't a life!!!! Why does Medicaid and health-related issues (billing, etc.) have to be such a freaking headache????

ideas for my youtube

Thought of something for my YouTube channel. Name the channel "Jamie's Journey" and have a weekly Q&A segment called "jabber-jawing with Jamie". Anyone like this idea??? It would give in-depth looks at my life with my disabilities and trying to push through, to have a semi-"normal" life. Some days will be out and about, some will be looking at doctor visits, some will be routines, some will be about me doing cooking/baking, some will be me lip-syncing, etc. ... Some will be me dancing around the apartment, some will be tag videos, some will feature guests like my fiance', my parents, grandmother, family, etc.... However, I am sick and this will not begin until after I am feeling 100% better.

My love story= David+Jamie finally got it edited and posted

Life update: More Twisted Tales