Just the tellings of life through the eyes of a 29 year old, Cajun Louisiana Native with Scoliosis, Kyphosis, EDS(Ehlers Danlos Syndrome), and other medical issues, just trying to get by. :)
Friday, January 22, 2021
Tuesday, January 12, 2021
Life in Slideshows
I made more slideshows about my life in pictures. I added all my slideshows to a playlist on my youtube.
Link to playlist: My Life Slideshows - YouTube
Monday, January 11, 2021
Facing Fears= Stage Fright: reading original Poem (2015)
For as long as i can remember, i have had massive stage fright. In 2015, I wrote a poem I was rather proud of and decided to put myself out there and read it at the LSU Eunice College talent show. I did really well and for weeks after, I got compliments on my poem. I felt so proud and accomplished :)
Scoliosis Journey Vids
New videos on my youtube: A slideshow of my 2012 Halo Traction+ Surgeries in St Louis, Walking after surgery, and rambling on pain meds after surgeries.
Tuesday, December 29, 2020
Heart Dr appointment and new medical vocabulary
Today was my cardiovascular appointment with my heart doctor and it seemed like a same-old same old- type appointment; which may be true for the doctor, but for me, as I have never really read over my discharge appointment summaries before really, I was shocked.
For some reason I decided to read my discharge summary papers once I got in the car, and according to the papers I had a few problems I was not aware of. I knew that they had said I had a valve that was being watched, but according to the papers, I have "acquired insufficency of aortic valve", in addition to "non-rheumatic mitral regurgaitation," as well as Sinus Tachycardia (I knew I had tachycardia but learned what type). I also have WPW (Wolf Parkinson white syndrome, which I knew about already and had a cardiac radiofrequency ablation for it in 2013.)
I scheduled a Echocardiogram for Jan. 15, 2021 at 7:15 a.m. and will get results on Jan 20, 2021 and will update with results when I get them.
But to see those new medical problems (even if they not new in my medical history, they were new for my discovery) were definitely scary and made me realize I need to maybe pay more attention to my medical information. It is my body, I need to be familiar with it.
Anyway, goodnight all.
Saturday, December 26, 2020
Errand in town ends in Disgust!
I was so disgusted today! I went into Citi Trends in Opelousas and was looking for baby clothes for my fiance’s niece, and I passed a T shirt on a 4T hanger that had “Juicy” written on the shirt! Seriously?! FOR a 4T?! That is a 4 year old! What self respecting parent would put their child in that?! That is like a calling card for pedophiles or these “Minor-Attracted people” as they wanna be called now. UGH! I legit wanted to puke in my mouth. With all the child trafficking, child abducting, human trafficking stuff running rampant in today’s society now-a-days, they would put this trash out?! WTF. Rant over!
Superbowl 2023: So tired of Hypocrisy!
Food for thought: Let me start this post by saying this: I did not watch the superbowl nor did I watch the halftime performance. I did how...
-
Food for thought: Let me start this post by saying this: I did not watch the superbowl nor did I watch the halftime performance. I did how...
-
I had to accept/learn that I was “different,” from a very early age; I want to say I was probably about 5 years old when I had the first in...
-
Ode to Mom. There are many ways to describe my Mom; the best way is through several songs lyrics. The first song, Mom by Meghan Train...