Friday, May 31, 2019

Got the most devastating news today-May 30, 2019

Just 11 days before my grandma's birthday, my fiance' had a missed call from my mom this morning so I called her back; she wanted him to tell me that my grandma(mommee) is in the hospital and it wasn't looking good, that her kidneys were failing and they were debating on dialysis. Just wanting me to "prepare for the worst."

My "Mommee" is my last remaining grandparent and after she passes, I will basically be a "grandparent orphan." Never will she get to see me walk down the aisle for my wedding(which is a year away), never will she be able to see me become a parent, never will she be able to see me finish school and chase my dreams or any other things I had dreamed about her seeing for my future.

I love you, Mommee. Please recover from this, but I also know that if you do pass, it is God's will and you will be in a better place. No longer suffering from dementia, confusion, and pains of this world; only the loved ones left behind are the ones who mourn and grieve the loss. <3

AntiBullying Rant (youtube video, Posted 2018)

End bullying now!

VBS SonTreasure Island Dance Youtube Video (Posted on youtube on 2019, but VBS Summer 2018)

The dance from Summer 2018- I did the best I could. I don't have the best coordination, but the main purpose of the counselors doing the dance isn't to "perfect," but to help teach our class the dance moves and encourage participation, which it did. So mission accomplished.

heart poem (old piece)

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Red heart,
Symbol of love,
Fitting together,
Like pieces of a puzzle.

Love,
Community, people, socialization,
Family, friends, significant others,
Neighbors, simple strangers on the street.

People,
Equal love and happiness.
Loneliness,
Equals sadness, depression.

No heart,
Equals no love,
An overwhelming dark black hole,
An emptiness inside,
Depleting away any chance of happiness,
Plaguing humanity into pits of depression and misery.



A body like a rollercoaster poem-(old piece)

   A body likes a roller coaster
Lots of twists and turns.

A winding track,
Many different options to explore.

Several different twists of the curves,
Twisting one way,
Going up a giant incline,
Slowly climbing up, up, up, to the very top.

It can be quite a tiring experience; that long trek
Then the scary part, the drop!

You drop down,
Your life in chaos and feel like the world on your shoulders,
Sending you into deep down depression and anxiety.

Meanwhile, the world is still spinning,
Going faster and faster,
Gaining speed as you "drop down the tracks" of life,
With you struggling to keep up.

Another twist in the tracks,
Then a loop upside down,
You start screaming,
Feeling like you are going to die,
Your life flashes before your eyes.

               With lots of ups and downs,
bumps, stumbles, and falls,”
“Bruises and scars,”
Not just physically,
The “rider” (patient) can also be traumatically scarred too.

Turning life upside down,
Like loops on a roller coaster,
Making the victim,
The patient, plagued with this disorder,
The limiting disability,
Scoliosis.

 Screaming and crying,
Although it seems as if no sound wants to come out,
Tired and emotionally drained,
“Let me off now,
Before I die.”

The disabled battle cry!





Our Crazy "Twisted" Rollercoaster Love story=David+Jamie (old written piece)

Once upon a time, there was a young woman named Jamie. Jamie thought she would die alone because she wasn't normal; she had many medical disabilities and low self-esteem as a result of being bullied most of her life. She ended up dating a guy with spina bifida who made Jamie realize that love was possible, but she thought it would be with someone with disabilities because they were the only ones who understood that majority of the world was against them. However, Jamie had been raised to be independent and the young man with spina bifida relied and blamed everyone else for his problems, so Jamie, for the sake of her sanity, ended it because she was constantly nagging him and trying to change him, which wasn’t good; she didn’t like the person she was becoming.
               Once again, Jamie thought she'd die alone. One day, she decided to muster up courage and see what would happen if she put herself out on the dating sites; and when someone would message "hey beautiful," she would reply, "are you blind, being sarcastic, or just crazy? I am not beautiful."
               During one of these encounters, a young man from Simmesport, Louisiana; an hour from where Jamie lived, contacted her. They talked via message on the dating site for a while and then he asked her if they could meet. They met face to face, at La Hacienda and it was a good date, however, Jamie was still hesitant and shy; she would check her rearview after the date to make sure he wasn't following her.
               On their “second date,” they went to a production at Opelousas Little Theater; Rocky Horror Picture Show. Neither Jamie nor David had seen the movie and didn’t know what to expect from the show…let’s just say it was Interesting, funny, and a little disturbingly awkward (at least for Jamie, not sure what David thought.)
               He took her to meet his family and they instantly fell in love with her; especially his 7 year old Niece, Serenity, which Jamie and David try to include in stuff ocassionally to get her out of the house.
               They continued to hang out and soon a love started to blossom. The young man was named David. David made Jamie laugh and smile, and some of her “quick wit come-backs” had returned; something her mom commented that “Jamie had lost over her years.” He was a great cook and baker, like Jamie. He was motivated, and went to church with her (something TJ did not do) . He was most, if not all, the things Jamie had dreamed of when she dreamt of love, but once she realized she was different than other girls, she gave up that dream. She had always thought “if guys only want dream girls with hot bodies, then I am their nightmare.” David changed that point of view somewhat, although Jamie still questions why he is with her when he could have anyone.

               Now the question of this journey will be whether David can break Jamie's shell of low confidence and self-esteem, and make her see her "true beauty," that he sees in her? Only time will tell or he may never break her out of it completely; a year later and she still questions why he is with her, why he loves her, and she is constantly worried that their future will be bleek and david will have regrets later on. What if she can't give him children? What if she loses her SSI because they get married? what if his paycheck isn't enough to support them until she can get her degree and make money herself? Worry, worry, worry, sometimes I wish I could turn my mind off! I love David but when that doubt gets into my head, I push him away because I worry I am not good enough for him. I need to stop and realize Love can conquer much, and doubt is death. Maybe One day I will. When I am not worrying and letting it get in the way of our relationship, the relationship is great fun for the most part. David loves to cook together in the kitchen. Sometimes, he will come up behind me and hug me or sometimes tickle me while I am doing something in the kitchen (cooking-wise or doing dishes or laundry- our washer/dryer is in part of the kitchen.) We play fight, I’ll play-punch him, and he will hold me and hug me, or sometimes pick me up and hang me upside down or over his head (I am terrified of heights) but I never “surrender.” I keep “fighting him.” Other times, we enjoy snuggling on the couch to watch movies together, and play “popcorn catch (which I suck at)” but it is a great excuse to start a popcorn fight (throwing popcorn at each other, which Beignet enjoys cause she gets to eat the popcorn when it hits the floor.) After a year we are still learning each other; our views (that sometimes differ which cause some arguments but we end up “agreeing to disagree” whether it be his patience level with his niece, Beignet sleeping in the bed, politics, religion, etc.), what things he enjoys/what things I enjoy, favorite foods, ideas for our future, etc. Our summer vacation in Hot springs was so much fun and I am glad my parents let me bring him along to our condo. It was a great bonding experience, especially when we went to the superhero and star wars museum! That was fun; dressing up in the Jedi robes and playing with the light sabers, hitting each other with them. HAHA! It is so funny how he was able to get me into star-wars, something TJ tried and failed to do. Guess David just had something a little more special, I don’t know.
 One thing that really gets on my nerves though is that I look so young and he looks so much older (even though in truth it is only 6 year gap), people think he is either my dad, my older brother, or worse, a sexual predator; “Aww what a great dad,” “what a sweet older brother,” or “what is that old man doing with that young girl?” It is even worse when my mom is with us, people then think him and my mom are married and I am their daughter. I am tempted to wear a sign or make t-shirts for us that read “I am over 21, he is not my dad nor is he my older brother and he is most definitely not a sexual predator. Mind y’all own business and stay out of mine (maybe add a middle finger for effect Ha ha.)
 All I know is I truly am happy with David ¾, (if not more) of the time with him. I can’t see my life without him.

We got engaged in December on Christmas Eve when he proposed to me at my parents house. :) The wedding date is set for May 23, 2020 unless it has to be pushed back due to medical recovery from my surgery.

The last Week-Stomach Problems- May 29, 2019

The last week or so, I been having stomach problems. First, my fiance' niece was over here and any change in routine and my stomach routine goes out of wack (constipation). I was hurting more in my back and hips, lots of belching, bloating, nausea, decreased appetite, and gas; so I thought maybe it was due to constipation, however, once I did get back on my bathroom routine, I still had problems continue.
when I am hungry, I get nauseated, and once I eat, it chills out for a little while, unless I overeat, and then nausea comes back. I still have decreased appetite, craving more sweets, still belching a lot, still got a lot of bloating and gas, and at least my pain in my back and hips has returned to its normal-pain levels.
Yesterday and Today, it was BBQ lunch I had yesterday and then I also had red velvet cake today, so my stomach is really hurting and gurgling :'(

August cannot come fast enough. I think that is a lot of my issues- the broken rods, my Kyphosis getting worse again, putting pressure on my tummy. :(

Superbowl 2023: So tired of Hypocrisy!

  Food for thought: Let me start this post by saying this: I did not watch the superbowl nor did I watch the halftime performance. I did how...